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Welcome to the Get Your ACT Together tool — a guide to better managing your multiple sclerosis symptoms, for people living in the ACT.

While the content is designed by people in the ACT, for people in the ACT, it includes information that is useful for all people living with multiple sclerosis, wherever you live.

This tool focuses on six common symptoms of MS: emotions, fatigue, continence, pain, heat sensitivity and cognition — and we hope to expand this to more symptoms in the future. If you have would like support to address other symptoms, please contact MS Connect on 1800 042 138 or msconnect@ms.org.au

Complete the questions below to receive your personalised report.


Please enter your name and email address


Please fill out the below fields

I need help with...?

Please pick a symptom below
Emotions
Fatigue
Continence
Cognition
Heat Sensitivity
Pain

Please answer the below...


Please fill out all the below fields marked in red

I identify as
(We ask this question as there are gender specific supports and/or health services for some symptoms)


I was diagnosed with multiple sclerosis


I am still working / volunteering


Please answer the below...


Please fill out all the below fields marked in red

I spend time engaging in hobbies and activities I enjoy


I feel hopeful about my future


I find myself reacting to things that wouldn't normally bother me with with tears, anger or in other ways


I worry about the negative impact my multiple sclerosis has on my relationships (partner/kids/friends/work colleagues)


I feel overwhelmed by my general day-to-day responsibilities


I don't want to go out because I worry about what people might think of my multiple sclerosis


When I'm having a rough day emotionally, I feel supported by my family and friends


Would you like an MS team member to contact you about managing your emotions?


Please answer the below...


Please fill out all the below fields marked in red

Has your fatigue changed lately?


Is your fatigue related to changes in your life, such as moving house, having a baby or changes in employment?


How often does fatigue affect commitments like your work, family or social life?


How often does fatigue stop you doing thinking tasks, such as paying your bills or making phone calls?


What has your quality of sleep been like over the past six weeks?


Would you like an MS team member to contact you about managing your fatigue?


Please answer the below...


Please fill out all the below fields marked in red

Does your bladder function prevent you from doing the things you enjoy?


Do you wake up twice or more during the night to go to the toilet?


Do you have to rush to use the toilet?


Do you plan your daily routine around where the nearest toilet is?


Do you sometimes feel you have not completely emptied your bladder?


Would you like an MS team member to contact you about managing your continence?


Please answer the below...


Please fill out all the below fields marked in red

Which of the following cognitive difficulties do you experience?
(Please select all that apply)


Do you feel your cognition negatively impacts you in any of the following areas?
(Please select all that apply)


Cognitive difficulties can impact on many aspects of wellbeing. Are changes in your cognition associated with any of the following?
(Please select all that apply)


How would you describe your current weight? (We ask this question as weight has an impact on overall brain health)


Do you smoke cigarettes?


Do you use a smartphone or tablet like an iPad?


What is your living situation?
(Please select all that apply)


Would you like an MS team member to contact you about managing your cognition?


Please answer the below...


Please fill out all the below fields marked in red

Have you experienced new or recent changes in your symptoms that you think are heat related?


Does heat sensitivity negatively impact on any of the following areas?
(Please select all that apply)


Do you experience changes in any of the following symptoms when you are heat affected?
(Please select all that apply)


Do you have a Concession or Health Care Card?


Do you have air-conditioning in your home?


What is your current driving status?


What is your current living situation?
(Please select all that apply)


Would you like an MS team member to contact you about managing your heat sensitivity?


Please answer the below...


Please fill out all the below fields marked in red

What does your pain feel like?
(Please select all that apply)


How long have you been experiencing pain?


How are you currently managing your pain?


Does pain negatively impact you in any of these areas?
(Please select all that apply)


Pain can impact on many aspects of wellbeing. Is your pain associated with any of the following?
(Please select all that apply)


Does pain limit or reduce your movement and/or ability to exercise OR do you avoid movement and/or exercise because you are afraid of increasing your pain?


What is your living situation?
(Please select all that apply)


Would you like an MS team member to contact you about managing your pain?

You have now completed the questions and your personalised report is ready for you to download or email to yourself

You may also choose one of the other symptoms - click here to restart the survey


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Feedback

We're focused on continually improving the services and products we deliver to you. We would appreciate it if you could please provide feedback about your experience of the interactive section and the report you received including what worked for you and what could be improved. Please visit our Compliments, complaints & feedback page to do so