Family & carer information

Multiple sclerosis can have a significant impact on the lives of family members and friends of a person living with the disease.
 
Our Family Matters information series offers useful guidelines so that family members and friends can understand the challenges they may face and the strategies that they can adopt to manage better.
           
  1. Learning to Live with MS: An Introduction
This booklet focuses on some of the immediate issues that you and your family may experience when someone close to you is newly diagnosed with multiple sclerosis.
 
  1. Living Well with MS
This booklet is designed to help you on your journey alongside the person living with multiple sclerosis. Being a carer can be demanding so you need to maintain your own health and wellbeing. Knowing how to manage multiple sclerosis, as well as making improvements to your own lifestyle, can make it easier for you to provide support.
           
  1. Caring for a Person with MS
As a family member or carer, knowing how to access support, services and advice can help you to manage the changes that the symptoms of multiple sclerosis may bring. This knowledge also enables you to better assist the person living with multiple sclerosis.

There is peer support available for carers which includes phone support, online groups and face to face groups. Find out what groups are available.

Other Programs

  • Telelink for family members and carers​: For family members or carers of people living with multiple sclerosis including partners, parents or siblings. To provide an opportunity to share information, education and support to stay well and connected. Wednesday afternoons between 26 October to 30 November 2017. RSVP to MS Connect on 1800 042 138 by Friday 20 October.
  • What's On in postive ageing (Tasmania)
  • Personal Alarms information (Tasmania)
  • Carer Gateway: Funded by the Australian Government this is a new, national service which provides information and practical resources to assist cares. You can find information about local support such as respite services, financial and legal considerations and even information on how to look after yourself when caring for someone else. 
  • Social Interiors: Social Interiors is a registered children's charity that provides practical in-home support for young people, aged 18 years or less, who help care for a family member with a disability or chronic illness. Services are free for eligible families living in Randwick and Waverley local government areas. To find out more about how they help young carers, visit www.socialinteriors.org.au
If you are interested in the above programs please contact the organisation directly as per the flyer.
      

Supporting Carers - What is available?

A webinar to explore some of the feelings and challenges experienced as a supporter of someone living with multiple sclerosis.
Explore where carers can get support to help take care of themselves both mentally and physically

Recorded June 2016
Webinar Handouts : Supporting Carers - What is available?


Supporting Carers – Benefits & Entitlements

The Financial Information Service at Centrelink can advise you about entitlements and benefits for which you may be eligible.

Recorded June 2016
Webinar Handouts : Supporting Carers - Benefits & Entitlements

Supporting Carers – Financial Advice for Partners & Carers

Health & Finance Integrated (HFI) assists people living with disability to deal with the financial, legal, social welfare and social services systems. 

Recorded June 2016
Webinar Handouts : Supporting Carers - Financial Advice for Partners & Carers


Support for continence management

Images of the presenter are not captured in the recording; for information about products shown during the live webinar contact The Continence Foundation on 1800 33 00 66




 




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